I have had two years of medical troubles, only being actually diagnosed with Prostate Cancer one year ago. It all started when I could not pee. I tried, but it was quickly painful, so a trip to A&E was called for. They faffed around for a few months (catheter in, catheter out... repeat) until the middle of 2025 when someone suggested I have a PSA test.
At which point I say "What's a PSA test?"
Anyway, it came back positive - 64 - and I was lined up for a biopsy (great fun!) and that confirmed my stage 4.
You have to understand that I have a 50+ year history of very little medical intervention - I have been a healthy person!
Then we start the meds - currently Abiraterone and Prednisolone (notice how quickly I rattle them off, now that I have been using them for 10-11 months?)
My energy levels have... dropped. I won't say plummedted, as I still manage to get around, but I am operating at 60-70% of where I was before this all started.
This looks to be the 'new me'.
Along this concerning, worrying - and more - journey, I have researched a lot, found the few sites that I feel comfortable to return to (keep it simple - or you will get lost down so many rabbit holes you will never find your way back). I have spoken to a lot of people who have the same condition, some worse than me, some not so much. Some are very experienced in this situation and actually give mini lectures, or talks. Many, like me, are caught up in the 'WTH is going on' situation, and continue to seek sound advice.
We are all in the club-that-nobody-wants-to-join. Having said that, I have 'met' some of the best people. People who have been dealing with this for years, but STILL manage to somehow keep going (the alternative - you just don't want to think about that...) so we all meet up online, discuss what is happening, who is having problems, does anyone have any solutions - and more.
There is no magic bullet, no pill that will make your troubles go away over a weekend. We are all facing it, one day at a time. That is all we can do, for the moment.
That said... the medical advances, even in the last 5-10 years, are astonishing. Who knows what is just around the corner|/
So, we keep going. Those that can, continue to live their lives, instead of just survivng.
I'm still trying to work out what camp I am in...
That's a joke, folks!
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